Bentley is learning how to eat. It is not easy. She is only taking 10ml at a feeding. (GOAL is 60ml) Our darling lost her natural tendency to swallow, latch, etc,. because of her separated esophagus/fistula. She has 20 minutes every three hours to eat. She cannot eat in between meals. I understand that they have to have a standard time limit because of how many babies they have but it is really hard to watch her fuss because she is hungry. It will still be about two weeks till we can come home. Please keep her in your prayers.
Bless your heart, all 3 of you! Hang in there I am sure our precious Bentley will soon get it all down pat and what a wonderful day that will be... I really miss you guys so much, I think of you all the time day and night and can not hardly wait to hear from you everyday. If the weather permits I will see you this weekend. I am sending all of my prayers, love and kisses... Grammy
ReplyDeleteIt was so wonderful to see little Bentley's face this morning without any tubes. She is just so beautiful and precious. I know it is difficult just now to help her relearn how to eat, but Bentley will catch up with the other babies. She comes from a LONG line of healthy eaters!!!!!!!!!!!! Go Bentley - Poppy and GeGe are with you little princess! Grammy and GeGe hope to see you this week-end if the weather is not too bad. Have a good day little one and eat, eat, eat!
ReplyDeleteHugs and lots of kisses!
Poppy and GeGe
Hey Jamie! This is Caroline, Bentley's weekend nurse. My mom forwarded your blog to me. I'm so glad to see that big honking tube finally gone! ;D Yay Bentley! I did want to explain why we are only feeding her for 20 minutes every 3 hours. After she feeds for the 20 minutes she would be burning more calories trying to eat than she would be taking in. We just want her to grow and be strong. :D I can't wait to see how she fed today!
ReplyDeleteHay you guys! Just checkin up on lil miss super star bentley. I am glad she is at least eating a little bit. She will catch up though. She will be eating taters and beans before you know it and then you wont be able to make her stop! I wish I could come see you guys. I miss yall alot! And cant wait to see her precious little face and give her lots of hugs and kisses. And some for her wonderful parents too!!! I love you guys and if you need anything let me know and I will be there ASAP! Love you guys! Kat
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